September 21, 2012
Natcher Conference Center, NIH
The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and the Pediatric Electronic Health Record Data Sharing Network (PEDSNet, through support from the AHRQ Enhanced Registries Program) held a conference entitled: Bridging the Terminology Gap in Pediatrics: Developing an Action Plan to Support the Continuum from Clinic to Research. The conference was held on Friday, September 21, 2012 at the Natcher Conference Center on the National Institutes of Health main campus in Bethesda, Maryland.
This event brought together leaders from government, academia, industry, and professional organizations in the field of Pediatrics to organize a governance structure and prioritization mechanism across multiple pediatric terminology efforts. This effort was aimed at harmonizing and bridging the continuum from research to health care delivery in pediatrics.
Topics of discussion at the conference included:
- Rationale for a standardized pediatric terminology
- Defining use cases suitable to guide this effort
- Mapping out a framework for governance and implementation of pediatric terminology.
The anticipated outcomes of this conference were:
- A consensus governance model
- An initial set of procedures for structuring that model
- An action plan for implementing terminologies
- A set of next steps to formalize the governance process.
A video recording of the conference can be found here, and the agenda and conference materials can be found here .