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 Workshops and Other Events

Upcoming Workshops and Other Events

Past Workshops and Other Events

Workshop and Event Meeting Date(s) Intent and Content of Meeting
Webinar on Study Content Development May 22, 2014 The goal of the webinar was to explore and discuss:
  • The validity and acceptability of using a composite outcome – the higher-level functions of a healthy 21-year-old person – as an operational construct to help frame data collection.
  • Any additional outcomes or developmental endpoints that should be considered.
  • Factors that the NCS should use to prioritize assessments. 
 
Some examples of factors considered were:
  • Potential public health impact.
  • Technical feasibility, including timing of data collection with regard to potential developmental vulnerability.
  • Scientific opportunity to address knowledge gaps and illuminate developmental pathways.
National Academy of Sciences: Design of the National Children’s Study and Implications for the Generalizability of Results October 31, 2013 Open meeting of NAS/IOM review panel.
National Academy of Sciences: Design of the National Children’s Study and Implications for the Generalizability of Results August 16, 2013 Open meeting of NAS/IOM review panel.
Data Users Workshop February 13, 2013 The goal of the workshop was to:
  • Provide some background on the data use policies and data lifecycles of the National Children’s Study
  • Garner input from interested federal and non-federal research partners on how to proceed with data releases that is aligned with other federal research efforts and data use policies.
The workshop featured panel discussions on:
  • data documentation
  • quality assurance/quality control processes
  • data use protocols
  • disclosure review
National Academy of Sciences Workshop January 11, 2013 The workshop, on the design of the National Children's Study, provided a forum for expert discussion of two topics central to the implementation of the National Children’s Study:
  • Details concerning the collection of environmental exposure measures
  • The distribution of the sample among several potential cohorts.
Bridging the Terminology Gap in Pediatrics: Developing an Action Plan to Support the Continuum from Clinic to Research   September 21,2012 Collaborative conference that brought together leaders from government, academia, industry, and professional organizations in the field of child health to discuss harmonization across multiple pediatric terminology efforts to bridge the continuum from research to health care delivery in pediatrics.

Topics of discussion at the conference included: 
  • Rationale for a standardized pediatric terminology
  • Defining use cases suitable to guide this effort
  • Mapping out a framework for governance and implementation of pediatric terminology.
  • An action plan for implementing terminologies
National Children’s Study Community Videocast July 12, 2012  A videocast was hosted by National Children’s Study Director Dr. Steven Hirschfeld, other members of the Program Office and for all community advisory board (CAB) members and other community stakeholders from across the country.
The purpose of the Videocast was to update our community partners on recent changes in the National Children’s Study, including changes in contractors and other recent transitions.
Discussion of potential sampling strategies for the National Children’s Study, Main Study May 29, 2012 The goal of the meeting was to discuss details of the analytic strategies and potential efficiencies that can be achieved in all stages of sampling.  Discussions focused on specific questions and issues related to:
  • geographic area sampling
  • provider sampling and sampling within providers,
  • supplementary sampling
  • missingness by design.
Metadata Repository Workshop January 23, 2012 The goal of this workshop was to exchange knowledge and experiences in:
  • the use of metadata in the data lifecycle of studies
  • inform the development and population of the Metadata Repository for the National Children's Study
  • promoting connections and collaborations between metadata curators and users.  
Health Disparities Among Immigrant Children December 15-16, 2011 Researchers presented the findings of numerous studies related to immigrants in the United States and made a number of important suggestions about how the National Children’s Study could better capture information on immigrants and their children. Studies were presented on a wide variety of topics relevant to child health, including research on health of immigrant children; the “immigrant paradox” (i.e., good health despite disadvantaged socioeconomic status) in children; health issues related to specific immigrant ethnic groups; issues related to undocumented status; and measurement of cultural factors.
Four key topics areas were discussed:
  • Migration and Health Disparities in Childhood
  • Maternal and Child Health; Understanding Race, Ethnicity, and Immigration Status
  • Measuring Migration and Immigration in Studies of Child Health
  • Measuring Social and Cultural Dimensions of Child Health
National Children’s Study Research Day August 24, 2011 The goal of the National Children’s Study (NCS) Research Day was to inform participants about current National Children’s Study research and the potential for scientific collaboration and innovation with the Study. The agenda included a presentation of the National Children’s Study preliminary data, infrastructure, and development of a plan for new collaborations as the Study evolves. The meeting and accompanying poster session was targeted to all NIH researchers and staff as well as NCS federal and community partners, especially those interested in learning more about the scientific and collaborative opportunities potentially available as the NCS continues to progress. Topics included:
  • Feasibility studies of whole genome sequencing of Study families and new environmental technologies
  • New environmental analytic technologies
  • Harmonized terminology and objective assessments of health status across developmental stages
  • Community engagement, sampling results, and health disparities research
  • Human subjects and data protection
Innovative Technologies for Longitudinal Birth Cohort Study Visit Assessments July 19, 2011 The National Children’s Study Innovative Technology Web Seminar presented examples of innovative environmental measurement technologies and discussed further development for application in longitudinal cohort Study visit assessments for consideration in the National Children’s Study. 
Presentations focused on:
  • A brief description of the current technology
  • Current applications and results
  • Emerging trends and opportunities for application in longitudinal cohort studies.
National Children’s Study Environmental Summit Summary May 13, 2011 The aim of the National Children’s Study Environmental Summit was to share information about linking environmental exposures across the critical stages of child growth and development. Experts came from across the country and from numerous health science disciplines. Discussions covered:
  • What is known about susceptibilities during the major critical stages of a child’s growth and development—especially those in the first 6 years of life.
  • The key developmental stages and transition points between stages that occur in the child.
  • Important environmental exposures and their potential consequences at these developmental stages.
  • Where scientific information is absent or limited, often providing suggestions for future research.  
Participants shared their experience and expertise on the instruments that can be used to gather information about a child’s environment, including emerging and innovative technologies that, with some additional investigation, could be further developed, tested, and considered for a large-scale study as broad as the National Children’s Study.  
  6/12/2014
  6/12/2014