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 September 2005 NCSAC Meeting Agenda

The 12th Meeting of the National Children’s Study Federal Advisory Committee (NCSAC)

September 20-21, 2005
Gaithersburg Marriott Washingtonian Center
Gaithersburg, MD


Final Agenda

Day 1 Agenda: Tuesday, September 20
Day 2 Agenda: Wednesday, September 21


Tuesday, September 20

7:30 a.m.-8:30 a.m. Registration
   
8:30 a.m.-9:15 a.m. Welcome and Introductions
Alan R. Fleischman, MD
Chair
National Children’s Study Federal Advisory Committee (NCSAC)
   
9:15 a.m.-9:45 a.m. Welcome and Update of the National Children’s Study
Peter C. Scheidt, MD, MPH
Director
National Children’s Study
   
9:45 a.m.-10:30 a.m. National Research Council/Institute of Medicine Report:
Ethical Issues in Housing-Related Health Hazard Research
Involving Children, Youth, and Families

Bernard Lo, MD, PhD, Report Committee Chair
Director, Program in Medical Ethics
University of California, San Francisco
   
10:30 a.m.-10:45 a.m. Break
   
10:45 a.m.-11:00 a.m. Report from the Director, NICHD
Duane F. Alexander, MD
Director
National Institutes of Child Health and Human Development, NIH
   
11:00 a.m.-12:30 p.m.

Role of Behavioral and Psychosocial Factors in the National Children’s Study
Sarah S. Knox, PhD
Behavioral Scientist
National Children’s Study Program Office

NCSAC Discussion and Recommendations
General Discussion*

   
12:30 p.m.-2:00 p.m. Lunch On Your Own
Working Lunch: NCSAC Community Engagement Subcommittee

12:30 p.m.-1:00 p.m. Closed Administrative Session
1:00 p.m.-2:00 p.m. Open Session
   
2:00 p.m.-3:30 p.m.

Ethical Considerations: Informing Participants, Families,
and Communities of Information Learned

Myron Genel, MD, Chair
Ethics Subcommittee, NCSAC
Professor Emeritus of Pediatrics
Child Health Research Center
Yale University School of Medicine

NCSAC Discussion and Recommendations
General Discussion*

   
3:30 p.m.-3:50 p.m. Break
   
3:50 p.m.-4:15 p.m. Update from the National Children’s Study
Interagency Coordinating Committee (ICC)

Amy Branum, MSPH
Health Statistician
Infant and Child Health Studies
National Center for Health Statistics
Centers for Disease Control and Prevention (CDC)
   
4:15 p.m.-4:30 p.m. Concluding Remarks
   
4:30 p.m. Adjourn for the Day



*The public is invited to ask questions and give brief comments during the General Discussion periods.



Wednesday, September 21

7:30 a.m.-8:30 a.m. Registration
   
8:30 a.m.-8:45 a.m. Welcome and Recap of Day One
Alan R. Fleischman, MD
   
8:45 a.m.-9:15 a.m. The Role of Genetic Information in the National Children’s Study
Cynthia A. Moore, MD, PhD
Team Leader, Genomics and Population Health Research Team
Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention (CDC)
   
9:15 a.m.-10:30 a.m.

Genetics Panel Discussion

Moderator
Ruth A. Brenner, MD, MPH
Director, Protocol Development
National Children’s Study

Panel Members

Jeffrey Long, PhD
Professor of Human Genetics
University of Michigan

Alan R. Fleischman, MD

Cynthia A. Moore, MD, PhD

Comments
Edward R.B. McCabe MD, PhD
Professor and Executive Chair
Department of Pediatrics
University of California, Los Angeles

NCSAC Discussion and Recommendations
General Discussion*

   
10:30 a.m.-10:45 a.m. Break
   
10:45 a.m.-11:15 a.m.

Peer Review of the Study Protocol—Potential Mechanisms
Alan R. Fleischman, MD

NCSAC Discussion and Recommendations
General Discussion*

   
11:15 a.m.-12:00 p.m. ’Outside Proposals’ and Public Private Partnerships: Review Process
Marion J. Balsam, MD
NCSAC Executive Secretary
Research Partnerships Program Director
National Children’s Study

NCSAC Discussion and Recommendations
General Discussion*

   
12:00 p.m.-1:30 p.m. Lunch On Your Own
Working Lunch: NCSAC Concept Review Subcommittee

12:00 p.m.-12:30 p.m. Closed Administrative Session
12:30 p.m.-1:30 p.m. Open Session
   
1:30 p.m.-3:00 p.m. Clinical, Economic, and Regulatory Implications
of the National Children’s Study

Moderator
Peter C. Scheidt, MD, MPH

Panel Members

Donald J. Dudley, MD
Professor, Department of Obstetrics and Gynecology
University of Texas Health Science Center at San Antonio

Jerome A. Paulson, MD
Associate Professor of Pediatrics
Associate Research Professor of Environmental and Occupational Health
George Washington University

William H. Farland, PhD
Acting Deputy Assistant Administrator for Science
Acting Science Advisor
U.S. Environmental Protection Agency (EPA)

NCSAC Discussion and Recommendations
General Discussion*

   
3:00 p.m.-3:15 p.m. Break
   
3:15 p.m.-4:15 p.m. Support of the National Children’s Study

National Medical Association (NMA)

Renee Jenkins, MD, FAAP
Past Chair, Pediatric Section
National Medical Association
Professor and Chairman
Department of Pediatrics and Child Health
Howard University


American Chemistry Council (ACC)
Lee Salamone
Director
Public Health and Science Policy Issue Group


General Discussion*
   
4:15 p.m.-4:30 p.m. Next Steps
   
4:30 p.m. Adjourn



*The public is invited to ask questions and give brief comments during the General Discussion periods.

  6/1/2008
  1/30/2006