September 2005 NCSAC Meeting Agenda

The 12th Meeting of the National Children’s Study Federal Advisory Committee (NCSAC)

September 20-21, 2005
Gaithersburg Marriott Washingtonian Center
Gaithersburg, MD

Final Agenda

Day 1 Agenda: Tuesday, September 20
Day 2 Agenda: Wednesday, September 21

Tuesday, September 20

7:30 a.m.-8:30 a.m.	Registration

8:30 a.m.-9:15 a.m.	Welcome and Introductions Alan R. Fleischman, MD Chair National Children’s Study Federal Advisory Committee (NCSAC)

9:15 a.m.-9:45 a.m.	Welcome and Update of the National Children’s Study Peter C. Scheidt, MD, MPH Director National Children’s Study

9:45 a.m.-10:30 a.m.	National Research Council/Institute of Medicine Report: Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families Bernard Lo, MD, PhD, Report Committee Chair Director, Program in Medical Ethics University of California, San Francisco

10:30 a.m.-10:45 a.m.	Break

10:45 a.m.-11:00 a.m.	Report from the Director, NICHD Duane F. Alexander, MD Director National Institutes of Child Health and Human Development, NIH

11:00 a.m.-12:30 p.m.	Role of Behavioral and Psychosocial Factors in the National Children’s Study Sarah S. Knox, PhD Behavioral Scientist National Children’s Study Program Office NCSAC Discussion and Recommendations General Discussion*

12:30 p.m.-2:00 p.m.	Lunch On Your Own Working Lunch: NCSAC Community Engagement Subcommittee 12:30 p.m.-1:00 p.m. Closed Administrative Session 1:00 p.m.-2:00 p.m. Open Session

2:00 p.m.-3:30 p.m.	Ethical Considerations: Informing Participants, Families, and Communities of Information Learned Myron Genel, MD, Chair Ethics Subcommittee, NCSAC Professor Emeritus of Pediatrics Child Health Research Center Yale University School of Medicine NCSAC Discussion and Recommendations General Discussion*

3:30 p.m.-3:50 p.m.	Break

3:50 p.m.-4:15 p.m.	Update from the National Children’s Study Interagency Coordinating Committee (ICC) Amy Branum, MSPH Health Statistician Infant and Child Health Studies National Center for Health Statistics Centers for Disease Control and Prevention (CDC)

4:15 p.m.-4:30 p.m.	Concluding Remarks

4:30 p.m.	Adjourn for the Day

*The public is invited to ask questions and give brief comments during the General Discussion periods.

Wednesday, September 21

7:30 a.m.-8:30 a.m.	Registration

8:30 a.m.-8:45 a.m.	Welcome and Recap of Day One Alan R. Fleischman, MD

8:45 a.m.-9:15 a.m.	The Role of Genetic Information in the National Children’s Study Cynthia A. Moore, MD, PhD Team Leader, Genomics and Population Health Research Team Office of Genomics and Disease Prevention Centers for Disease Control and Prevention (CDC)

9:15 a.m.-10:30 a.m.	Genetics Panel Discussion Moderator Ruth A. Brenner, MD, MPH Director, Protocol Development National Children’s Study Panel Members Jeffrey Long, PhD Professor of Human Genetics University of Michigan Alan R. Fleischman, MD Cynthia A. Moore, MD, PhD Comments Edward R.B. McCabe MD, PhD Professor and Executive Chair Department of Pediatrics University of California, Los Angeles NCSAC Discussion and Recommendations General Discussion*

10:30 a.m.-10:45 a.m.	Break

10:45 a.m.-11:15 a.m.	Peer Review of the Study Protocol—Potential Mechanisms Alan R. Fleischman, MD NCSAC Discussion and Recommendations General Discussion*

11:15 a.m.-12:00 p.m.	’Outside Proposals’ and Public Private Partnerships: Review Process Marion J. Balsam, MD NCSAC Executive Secretary Research Partnerships Program Director National Children’s Study NCSAC Discussion and Recommendations General Discussion*

12:00 p.m.-1:30 p.m.	Lunch On Your Own Working Lunch: NCSAC Concept Review Subcommittee 12:00 p.m.-12:30 p.m. Closed Administrative Session 12:30 p.m.-1:30 p.m. Open Session

1:30 p.m.-3:00 p.m.	Clinical, Economic, and Regulatory Implications of the National Children’s Study Moderator Peter C. Scheidt, MD, MPH Panel Members Donald J. Dudley, MD Professor, Department of Obstetrics and Gynecology University of Texas Health Science Center at San Antonio Jerome A. Paulson, MD Associate Professor of Pediatrics Associate Research Professor of Environmental and Occupational Health George Washington University William H. Farland, PhD Acting Deputy Assistant Administrator for Science Acting Science Advisor U.S. Environmental Protection Agency (EPA) NCSAC Discussion and Recommendations General Discussion*

3:00 p.m.-3:15 p.m.	Break

3:15 p.m.-4:15 p.m.	Support of the National Children’s Study National Medical Association (NMA) Renee Jenkins, MD, FAAP Past Chair, Pediatric Section National Medical Association Professor and Chairman Department of Pediatrics and Child Health Howard University American Chemistry Council (ACC) Lee Salamone Director Public Health and Science Policy Issue Group General Discussion*

4:15 p.m.-4:30 p.m.	Next Steps

4:30 p.m.	Adjourn

*The public is invited to ask questions and give brief comments during the General Discussion periods.

HHS | NIH | NICHD | USA.gov

NIH... Turning Discovery Into Health^®

Printed from the National Children's Study Web Site 05/24/2013 05:46 AM