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 March 2004 NCSAC Meeting Agenda

The 9th Meeting of the National Children’s Study Federal Advisory Committee (NCSAC)

March 4-5, 2004
Holiday Inn Select
Bethesda, MD

Day 1 Agenda: Thursday, March 4
Day 2 Agenda: Friday March 5

Meeting Objectives

The planning phase of the National Children’s Study is nearing completion. Therefore, a primary goal of this Advisory Committee meeting is to finalize the work of the Working Groups. To facilitate this process, the National Children Study Advisory Committee (NCSAC) members will work with Co-Chairs of the Working Groups (WGs) or with crosscutting WGs to produce the following:

  • Questions from the NCSAC and ICC
  • Increased specificity about exposures and how and when they could be measured
  • Increased specificity about outcomes and how and when they could be measured
  • Identification of gaps in the current hypotheses
  • Opportunities for other crosscutting Working Group Sessions
  • Incorporation of healthy development to measures worksheet and hypothesis

Products from the meeting will be resolution between WG and NCSAC members concerning the work requested on the proposed hypotheses, a list of desired final work products for the June meeting, and feedback on plans regarding the future of the WGs. Goals of the meeting will be to discuss the following: potential measurements and outcomes, the changing role of the NCSAC and WGs as the Study moves into the implementation phase, and final advice on responses to the ICC/NCSAC questions.

Agenda As of 03/02/04

Thursday, March 4

8:00 a.m.–8:05 a.m. Welcome
Don Mattison, M.D.
Chairperson, NCSAC

This orientation will include discussion regarding the transition taking place in the activity of the NCSAC–– from recommendations on planning to recommendations related to implementation; the need to take the measure of all Working Group work products and determine for those not finished how much longer it will take and what resources are needed to complete their work.
8:05 a.m.–8:30 a.m. Introduction
Jan Leahey
Executive Secretary, NCSAC

Overview of Administrative Issues
Discussion of Transition from Planning Phase to Implementation
Review and Comments on Minutes from Last Meeting
Review of the Agenda
Goals of the Meeting
Action Items Recommendations on WG work products Determine where individual WGs stand Determine what additional products are needed Determine what can we do to facilitate getting those products Discuss the future schedule and activity of the NCSAC and WGs
8:30 a.m.–9:00 a.m. Program Office Update
Study Timelines, Institute Updates

Peter Scheidt, M.D.
National Children’s Study Director
9:00 a.m.-9:30 a.m. Update of Protocol Development
Ruth Brenner, M.D.
National Children’s Study Program Office
9:30 a.m.-10:00 a.m. Report from Joint ICC/NCSAC Executive Committee
Judith A. Graham, Ph.D. NCSAC Member and Chair of the Executive Committee
Senior Scientist and Senior Director
Long-Range Research Initiative, American Chemistry Council

10:00 a.m.-10:15 p.m. BREAK
10:15 a.m.-10:45 a.m. Working Group Presentations
  Exposure to Chemical Agents Working Group
Barry Ryan, Ph.D., NCSAC Member
Professor, Department of Environmental and Occupational Health
Rollins School of Public Health, Emory University

10:45 a.m.-11:15 a.m. Assisted Reproductive Technologies
Donald Dudley, M.D., NCSAC Member
Professor, Department of Obstetrics and Gynecology
University of Texas Health Science Center at San Antonio

Proposed Action Item: Request to the Fertility and Early Pregnancy WG to explore implications of several alternatives to examine ART effects within the Study and as a parallel adjunct to the Study

11:15 a.m.-12:15 p.m. NCSAC/ICC Liaisons and WG Co-Chairs Convene
Individual breakout sessions with liaisons and co-chairs to review status of existing WG products. ICC liaisons will present a summary of the individual WG products submitted to date.
Participants should proceed into assigned breakout rooms––2 groups at each table in a breakout room, arranged by the ICC liaison. This structure will remain all day. This initial session is to hear the summary of the products of the WGs prepared by the ICC members. The breakout will be chaired by one of the NCSAC members. These discussions will form the basis for the subsequent discussion leading to the completion of the work products or the agreement on a schedule for producing those products (room assignments included in meeting folder).
12:15 p.m.-1:30 p.m. LUNCH ON OWN
Executive Committee members will meet for a working lunch
1:30 p.m.-2:30 p.m. Presentation and Discussion of Positive Health Framework
Deborah Phillips, Ph.D., NCSAC Member
Chair, Department of Psychology
Georgetown University

Presentation of Proposed Hypotheses
Paul Wise, M.D., M.P.H.
Vice-Chief, Division of Social Medicine and Health Inequalities
Brigham and Women’s Hospital, Boston University

Deborah Phillips, Ph.D., NCSAC Member
Chair, Department of Psychology
Georgetown University

2:30 p.m.-4:30 p.m. Breakout Sessions
Working Group Sessions
WGs will return to previous room assignments and continue the efforts to finalize or develop a plan to finalize work products. Other WGs may be consulted across the various breakout groups as needed and appropriate. This will be an opportunity for co-chairs to meet either with liasons or in crosscutting WG sessions to finalize WG products, complete responses to NCASC/ICC questions, discuss specificity of exposures/outcomes, and determine measurements for healthy development.
4:30 p.m.–6:00 p.m. Reconvene Plenary Session
Don Mattison, M.D.
Chairperson, NCSAC
NCSAC liaisons will provide their interpretation to full NCSAC on the status of the various Working Group products––what is needed, what is needed to complete their work, can the Program Office provide assistance, and when will the work products needed be done. For those groups that have completed their work, the NCSAC liaison should indicate when the WG should be thanked and disbanded. Also, for those done, a general sense of what might be considered as recommendation regarding advice to Dr. Alexander and the PO/ICC concerning the findings of that Working Group.
6:00 p.m. Session Adjourned for the Evening

      Friday, March 5

      8:30 a.m.- 9:00 a.m. Reconvene Plenary Session
      Overview of HHS Initiative - Electronic Medical Records

      Carolyn M. Clancy, M.D., Director
      Agency for Healthcare Research and Quality
      9:00 a.m.- 9:15 a.m. Health Disparities and Environmental Justice Working Group
      Racism Workshop

      Rueben Warren, D.D.S., Dr.PH, WG Co-Chair
      Associate Administrator for Urban Affairs
      Agency for Toxic Substances and Disease Registry, CDC

      Loretta Jones, M.A., NCSAC Member
      Executive Director, Healthy African American Families
      9:15 a.m.- 9:30 a.m. Update of Sampling Design Workshop
      Jim Quackenboss, M.S., ICC Member
      Office of Research and Development, EPA

      Robert Michaels, Ph.D., NCSAC Member
      University of Chicago
      9:30 a.m.- 11:00 a.m. Plenary Session
      Recommendations from NCSAC liaisons concerning
      phasing-out or reconfiguring WGs.
      11:00 a.m.- 11:15 a.m. BREAK
      11:15 a.m.- 12:00 p.m. Plenary Session
      Discussions regarding future role of NCSAC and
      objectives of June meeting
      12:00 p.m.- 12:30 p.m. NCSAC Open Forum
      12:30 p.m.- 1:00 p.m. Closing Announcements
      Don Mattison, M.D.
      Chairperson, NCSAC
      1:00 p.m. Adjourn