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 June 2003 NCSAC Meeting Agenda

The 6th Meeting of the National Children’s Study Federal Advisory Committee (NCSAC)

June 5–6, 2003
Holiday Inn Select
Bethesda, MD

Meeting Objectives of the June 2003 NCSAC Meeting

To provide recommendations on newly proposed hypotheses. Discussion will focus on review and decisions regarding hypotheses submitted from various Working Groups. Presentations will be offered by the Director of NICHD, and representatives from Office of Public Liaison, NICHD, and the March of Dimes. Discussion will also include updates regarding development of effective procedures for managing the study, processes to ensure effective communication, updates of protocol development, discussions regarding sampling strategies, and modifications to the study timeline.

Working Groups will offer presentations of the following:

  • Issues relating to the progress of the study
  • Issues relating to racism
  • Ethical issues

Final Agenda: 3/4/03

Thursday, June 5

8:00 a.m.-8:05 a.m. Welcome
Don Mattison, M.D.
Chairperson, NCSAC
8:05 a.m.-8:30 a.m. Introduction of New NCSAC Members, Continuing Members, ICC Members, Staff, and Visitors

Review and Comments on Minutes from Last Meeting
Review of Agenda and Modifications
Goals of the Meeting
Action Items
8:30 a.m.-8:45 a.m. Update on Outreach, NIH, Department, and Congressional Issues

George Gaines, Chief
Office of Public Liaison, NICHD
8:45 a.m.-10:00 a.m. Discussion Regarding Letter from Study Design Working Group

Nigel Paneth, M.D., M.P.H.
Michigan State University College of Human Medicine

Peter Gergen M.D., M.P.H.
National Institute of Allergy and Infectious Diseases, NIH

Continued Roles for Working Groups
10:00 a.m.-10:15 a.m. Break
10:15 a.m.-11:15 a.m. Health Disparities and Environmental Justice Working Group Presentation: How to Measure Racism

Camara P. Jones, M.D., M.P.H., Ph.D.
National Center for Chronic Disease Prevention and Health Promotion, CDC
11:15 a.m.-11:45 a.m. Report from Joint ICC/FAC Executive Committee

Judith A. Graham, Ph.D., NCSAC Member
Senior Scientist and Senior Director
Long-Range Research Initiative, American Chemistry Council
11:45 a.m.-1:00 p.m. Working Lunch:
Ethical Issues Relating to Advisory Committee Members for the NCS (Closed Session)

Gretchen Weaver, J.D. and Holli Beckerman Jaffe, J.D.
Office of General Counsel, NIH Ethics Counsel
1:00 p.m.-1:30 p.m. Status of Hypotheses, Update of Protocol Development/ICC Retreat

Ken Schoendorf, M.D., M.P.H.
National Center for Health Statistics, CDC
1:30 p.m.-2:00 p.m. March of Dimes

Nancy Green, M.D.
Medical Director
2:00 p.m.-2:45 p.m. NCS - Director’s Update

Duane F. Alexander, M.D.
Director, NICHD
2:45 p.m.-3:00 p.m. Break
3:00 p.m.-5:45 p.m. Review of Hypotheses - Discussion

Don Mattison, M.D.
Chairperson, NCSAC
5:45 p.m.-6:00 p.m. Summary of Ethics Workshop

Alan R. Fleischman, M.D., NCSAC Member
Senior Vice President
New York Academy of Medicine
6:00 p.m. Adjourn for the Day

Friday, June 6

8:00 a.m.-8:15 a.m. Sampling

Robert Michael, Ph.D., NCSAC Member
University of Chicago Harris School of Public Health
8:15 a.m. -8:30 a.m. Sampling

Peter Scheidt, M.D.
National Children’s Study Director
8:30 a.m.-9:00 a.m. Discussion of Sampling Issues
9:00 a.m.-9:30 a.m. Report of Status of Pilots

Adolfo Correa, M.D., Ph.D.
National Center on Birth Defects and Developmental Disabilities, CDC

Carole Kimmel, Ph.D.
National Center for Environmental Assessment, EPA
9:30 a.m.-10:00 a.m. Discussion of Hypotheses

Don Mattison, M.D.
Chairperson, NCSAC
10:00 a.m.-10:15 a.m. Break
10:15 a.m.-12:30 p.m. Discussion of Hypotheses

Don Mattison, M.D.
Chairperson, NCSAC
12:30 p.m.-1:30 p.m. Lunch
1:30 p.m.-2:00 p.m. NCS Program Office Update Study Timelines

Peter Scheidt, M.D.
National Children’s Study Director

Sarah Keim, M.A.
National Children’s Study Coordinator
2:00 p.m.-2:45 p.m. NCSAC Open Forum - Public Comments
2:45 p.m.-3:00 p.m. Closing Announcements

Don Mattison, M.D.
Chairperson, NCSAC
3:00 p.m. Adjourn